TY - JOUR AU - Koszorú, Kamilla AU - Steuer-Hajdu, Krisztina AU - J, Borza AU - K, Bodai AU - Szabó, Ákos AU - Bató, Alex AU - Szegedi, Andrea AU - Brodszky, Valentin AU - Rencz, Fanni AU - Sárdy, Miklós TI - The impact of atopic dermatitis on health-related quality of life JF - JOURNAL OF INVESTIGATIVE DERMATOLOGY J2 - J INVEST DERMATOL VL - 141 PY - 2021 IS - 10 SP - S162 EP - S162 SN - 0022-202X UR - https://m2.mtmt.hu/api/publication/32220060 ID - 32220060 N1 - Meeting Abstract 080 LA - English DB - MTMT ER - TY - JOUR AU - Rencz, Fanni TI - Impact of dupilumab on health-related quality of life in patients with atopic dermatitis. JF - BRITISH JOURNAL OF DERMATOLOGY J2 - BRIT J DERMATOL VL - 178 PY - 2018 IS - 2 SP - 319 EP - 320 PG - 2 SN - 0007-0963 DO - 10.1111/bjd.16170 UR - https://m2.mtmt.hu/api/publication/3335611 ID - 3335611 LA - English DB - MTMT ER - TY - JOUR AU - Gulácsi, László TI - A magánfinanszírozás helye a magyar egészségügyben. Forráshiányban az egészségügy - Mit tehetnek a biztosítók? TS - Forráshiányban az egészségügy - Mit tehetnek a biztosítók? JF - BIZTOSÍTÁS ÉS KOCKÁZAT J2 - BIZTOSÍTÁS ÉS KOCKÁZAT VL - 3 PY - 2016 IS - 2 SP - 88 EP - 97 PG - 10 SN - 2064-9584 DO - 10.18530/BK.2016.2.88 UR - https://m2.mtmt.hu/api/publication/3153522 ID - 3153522 LA - Hungarian DB - MTMT ER - TY - JOUR AU - Rencz, Fanni AU - Baji, Petra AU - Gulácsi, László AU - Kárpáti, Sarolta AU - Péntek, Márta AU - Poór, Adrienn Katalin AU - Brodszky, Valentin TI - Discrepancies between the Dermatology Life Quality Index and utility scores. JF - QUALITY OF LIFE RESEARCH J2 - QUAL LIFE RES VL - 25 PY - 2016 IS - 7 SP - 1687 EP - 1696 PG - 10 SN - 0962-9343 DO - 10.1007/s11136-015-1208-z UR - https://m2.mtmt.hu/api/publication/2989694 ID - 2989694 AB - OBJECTIVE: In many jurisdictions, deterioration in quality of life assessed with Dermatology Life Quality Index (DLQI) is used for medical and reimbursement decisions in various dermatological conditions such as psoriasis. However, utility values for health states defined by the DLQI have not yet been evaluated. Therefore, we aim to estimate utilities for different health states described by the ten items of the DLQI. METHODS: A cross-sectional survey was performed in a convenience sample of the general population. Seven DLQI health states with total scores of 6, 11 and 16 (3-3 and 1 states, respectively) were developed. All of them were different from each other in the number of affected items and severity levels of impairment. The 10-year time trade-off method was used to value health states. RESULTS: Mean utilities elicited by the respondents (n = 308) for the three 6-, three 11- and one 16-point DLQI health states were 0.62-0.75, 0.59-0.66, and 0.56, respectively. In half of the six pairwise comparisons, where health states with the same total DLQI score were compared, significant difference between utilities was found. In eight out of the 15 comparisons between health states with different DLQI scores, utilities were not significantly different. CONCLUSIONS: Utility values for health states with identical DLQI total score may significantly vary. This result might be generalisable to various patient populations, in which the DLQI is used; nevertheless, further research is needed. The discrepancies between DLQI scores and utilities might have an impact on medical and reimbursement decisions as they make the utility gain from treatment uncertain. LA - English DB - MTMT ER - TY - JOUR AU - Baji, Petra AU - Garcia-Goni, M AU - Gulácsi, László AU - Mentzakis, E AU - Paolucci, F TI - Comparative analysis of decision maker preferences for equity/efficiency attributes in reimbursement decisions in three European countries. JF - EUROPEAN JOURNAL OF HEALTH ECONOMICS J2 - EUR J HEALTH ECON VL - 17 PY - 2016 IS - 7 SP - 791 EP - 799 PG - 9 SN - 1618-7598 DO - 10.1007/s10198-015-0721-x UR - https://m2.mtmt.hu/api/publication/2933717 ID - 2933717 N1 - Department of Health Economics, Corvinus University of Budapest, Fővám tér 8., Budapest, 1093, Hungary CERGE-EI, Prague, Czech Republic Departamento de Economía Aplicada II, Universidad Complutense de Madrid, Madrid, Spain Economics Department, School of Social Sciences, University of Southampton, Southampton, United Kingdom University of Bologna, Bologna, Italy Murdoch University, Murdoch, Australia Cited By :8 Export Date: 9 May 2023 CODEN: EJHEA Correspondence Address: Baji, P.; Department of Health Economics, Fővám tér 8., Hungary; email: petra.baji@uni-corvinus.hu AB - BACKGROUND: In addition to cost-effectiveness, national guidelines often include other factors in reimbursement decisions. However, weights attached to these are rarely quantified, thus decisions can depend strongly on decision-maker preferences. OBJECTIVE: To explore the preferences of policymakers and healthcare professionals involved in the decision-making process for different efficiency and equity attributes of interventions and to analyse cross-country differences. METHOD: Discrete choice experiments (DCEs) were carried out in Austria, Hungary, and Norway with policymakers and other professionals working in the health industry (N = 153 respondents). Interventions were described in terms of different efficiency and equity attributes (severity of disease, target age of the population and willingness to subsidise others, potential number of beneficiaries, individual health benefit, and cost-effectiveness). Parameter estimates from the DCE were used to calculate the probability of choosing a healthcare intervention with different characteristics, and to rank different equity and efficiency attributes according to their importance. RESULTS: In all three countries, cost-effectiveness, individual health benefit and severity of the disease were significant and equally important determinants of decisions. All countries show preferences for interventions targeting young and middle aged populations compared to those targeting populations over 60. However, decision-makers in Austria and Hungary show preferences more oriented to efficiency than equity, while those in Norway show equal preferences for equity and efficiency attributes. CONCLUSION: We find that factors other than cost-effectiveness seem to play an equally important role in decision-making. We also find evidence of cross-country differences in the weight of efficiency and equity attributes. LA - English DB - MTMT ER - TY - JOUR AU - Baji, Petra AU - Gulácsi, László AU - Lovász, Barbara Dorottya AU - Golovics, Petra Anna AU - Brodszky, Valentin AU - Péntek, Márta AU - Rencz, Fanni AU - Lakatos, Péter László TI - Treatment preferences of originator vs. biosimilar drugs in Crohn’s disease; discrete choice experiment among gastroenterologists JF - SCANDINAVIAN JOURNAL OF GASTROENTEROLOGY J2 - SCAND J GASTROENTERO VL - 51 PY - 2016 IS - 1 SP - 22 EP - 27 PG - 6 SN - 0036-5521 DO - 10.3109/00365521.2015.1054422 UR - https://m2.mtmt.hu/api/publication/2896207 ID - 2896207 LA - English DB - MTMT ER - TY - JOUR AU - Chevreul, K AU - Berg, Brigham K AU - Brunn, M AU - des, Portes V ED - Serrano-Aguilar, P / Collaborator ED - Linertová, R / Collaborator ED - López-Bastida, J / Collaborator ED - Oliva-Moreno, J / Collaborator ED - de la Paz, MP / Collaborator ED - Pérez, MH / Collaborator ED - Abaitua, I / Collaborator ED - Taruscio, D / Collaborator ED - Kodra, Y / Collaborator ED - Schieppati, A / Collaborator ED - Stefanov, R / Collaborator ED - Iskrov, G / Collaborator ED - Gulácsi, László / Collaborator ED - Péntek, Márta / Collaborator ED - de Vega García, RS / Collaborator ED - Delgado, C / Collaborator ED - Kanavos, P / Collaborator ED - Angelis, A / Collaborator ED - Nicod, E / Collaborator ED - von der Schulenburg, J-MG / Collaborator ED - Kuhlmann, A / Collaborator ED - Persson, U / Collaborator ED - Ghatnekar, O / Collaborator ED - Brigham, K / Collaborator ED - Fattore, G / Collaborator ED - Cavazza, M / Collaborator ED - EuroVaQ, team / Collaborative Organization TI - Fragile X syndrome: Economic burden and health-related quality of life of patients and caregivers in France JF - JOURNAL OF INTELLECTUAL DISABILITY RESEARCH J2 - J INTELL DISABIL RES VL - 59 PY - 2015 IS - 12 SP - 1108 EP - 1120 PG - 13 SN - 0964-2633 DO - 10.1111/jir.12215 UR - https://m2.mtmt.hu/api/publication/3058339 ID - 3058339 N1 - Megjegyzés-25775221 Group Author: BURQOL-RD Res Network AB - Background: Fragile X syndrome (FXS) is the main hereditary cause of intellectual disability. Although the associated burden appears to be considerable, to date no study has comprehensively assessed the cost incurred because of FXS, including its specific impact on health-related quality of life and the burden on caregivers using standardised quantitative tools. The aim of this article is to provide data in order to increase awareness of the repercussions of FXS on patients and caregivers as well as on the health and social care systems in France. Methods: A retrospective cross-sectional study was carried out on 145 patients recruited through Le Goëland X-Fragile and Mosaïques, the French FXS patient associations. Data on their demographic characteristics and resource use were obtained from an online questionnaire, and costs were estimated by a bottom-up approach. The EQ-5D health questionnaire was used to measure patients' and caregivers' health-related quality of life. Perceived burden of care was measured using the Zarit Caregiver Burden Interview. The Barthel index, a non-utility-based assessment, was used to measure patients' level of dependence. Results: The annual total direct cost of FXS was estimated at €25800 per patient. The main contributors were informal care provided by the main caregiver (€10500) and social services (€8400). Healthcare costs, estimated at €2700, represented only a minor share. Mean EQ-5D utility scores were 0.49 for patients and 0.75 for caregivers. The mean burden for caregivers as measured by the Zarit Caregiver Burden Interview was 39.9. Conclusions: Fragile X syndrome requires significant resources that are mainly of a non-medical nature and are higher for children than for adults. Compared with related diseases, it constitutes a particularly high burden for caregivers. Using a bottom-up approach and a wide range of standardised measures, this study underscores the need for greater awareness of the burden of FXS as well as an assessment of new and existing interventions to address it. © 2015 John Wiley & Sons, Ltd. LA - English DB - MTMT ER - TY - JOUR AU - Fábián, Melinda AU - Tóth, Veronika AU - Somlai, Beáta AU - Hársing, Judit AU - Kuroli, Enikő AU - Rencz, Fanni AU - Kuzmanovszki, Daniella AU - Szakonyi, József AU - Tóth, Béla AU - Kárpáti, Sarolta TI - Terhesség asszociált melanomák klinikopatológiai jellemzőinek retrospektív vizsgálata JF - BŐRGYÓGYÁSZATI ÉS VENEROLÓGIAI SZEMLE J2 - BVSZ VL - 91 PY - 2015 IS - 6 SP - 235 SN - 0006-7768 UR - https://m2.mtmt.hu/api/publication/3018065 ID - 3018065 LA - Hungarian DB - MTMT ER - TY - JOUR AU - Herszényi, Krisztina AU - Pap, Dalma AU - Polgár, Karolina AU - Jókai, Hajnalka AU - Wikonkál, Norbert AU - Inotai, Dóra AU - Tordai, Attila AU - Rencz, Fanni AU - Brodszky, Valentin AU - Gulácsi, László AU - Kárpáti, Sarolta AU - Holló, Péter TI - Infekciók potenciális szerepe anti-TNF-α kezelés hatásvesztésének hátterében psoriasisban JF - BŐRGYÓGYÁSZATI ÉS VENEROLÓGIAI SZEMLE J2 - BVSZ VL - 91 PY - 2015 IS - 6 SP - 236 SN - 0006-7768 UR - https://m2.mtmt.hu/api/publication/3018064 ID - 3018064 LA - Hungarian DB - MTMT ER - TY - JOUR AU - Péntek, Márta AU - Czirják, László AU - Pfliegler, György AU - Boncz, Imre AU - Melegh, Béla AU - Molnár, Mária Judit AU - Kosztolányi, György AU - Baji, Petra AU - Brodszky, Valentin AU - Pogány, Gábor AU - Gulácsi, László TI - Lokalizált scleroderma és szisztémás sclerosis betegséggel élők életminősége és betegségterhe - a BURQOL-RD európai felmérés magyarországi eredményei JF - IMMUNOLÓGIAI SZEMLE J2 - IMMUNOLÓGIAI SZEMLE VL - 7 PY - 2015 IS - 4 SP - 21 EP - 29 PG - 9 SN - 2061-0203 UR - https://m2.mtmt.hu/api/publication/3016047 ID - 3016047 LA - Hungarian DB - MTMT ER -