@article{MTMT:32220060, title = {The impact of atopic dermatitis on health-related quality of life}, url = {https://m2.mtmt.hu/api/publication/32220060}, author = {Koszorú, Kamilla and Steuer-Hajdu, Krisztina and J, Borza and K, Bodai and Szabó, Ákos and Bató, Alex and Szegedi, Andrea and Brodszky, Valentin and Rencz, Fanni and Sárdy, Miklós}, journal-iso = {J INVEST DERMATOL}, journal = {JOURNAL OF INVESTIGATIVE DERMATOLOGY}, volume = {141}, unique-id = {32220060}, issn = {0022-202X}, year = {2021}, eissn = {1523-1747}, pages = {S162-S162}, orcid-numbers = {Szabó, Ákos/0000-0003-2386-4525; Bató, Alex/0000-0002-1450-4790; Sárdy, Miklós/0000-0003-4306-5093} } @article{MTMT:3335611, title = {Impact of dupilumab on health-related quality of life in patients with atopic dermatitis.}, url = {https://m2.mtmt.hu/api/publication/3335611}, author = {Rencz, Fanni}, doi = {10.1111/bjd.16170}, journal-iso = {BRIT J DERMATOL}, journal = {BRITISH JOURNAL OF DERMATOLOGY}, volume = {178}, unique-id = {3335611}, issn = {0007-0963}, year = {2018}, eissn = {1365-2133}, pages = {319-320} } @article{MTMT:3153522, title = {A magánfinanszírozás helye a magyar egészségügyben. Forráshiányban az egészségügy - Mit tehetnek a biztosítók?}, url = {https://m2.mtmt.hu/api/publication/3153522}, author = {Gulácsi, László}, doi = {10.18530/BK.2016.2.88}, journal-iso = {BIZTOSÍTÁS ÉS KOCKÁZAT}, journal = {BIZTOSÍTÁS ÉS KOCKÁZAT}, volume = {3}, unique-id = {3153522}, issn = {2064-9584}, keywords = {Magyarország; egészségbiztosítás; minőség; költség; magánegészségügy}, year = {2016}, pages = {88-97} } @article{MTMT:2989694, title = {Discrepancies between the Dermatology Life Quality Index and utility scores.}, url = {https://m2.mtmt.hu/api/publication/2989694}, author = {Rencz, Fanni and Baji, Petra and Gulácsi, László and Kárpáti, Sarolta and Péntek, Márta and Poór, Adrienn Katalin and Brodszky, Valentin}, doi = {10.1007/s11136-015-1208-z}, journal-iso = {QUAL LIFE RES}, journal = {QUALITY OF LIFE RESEARCH}, volume = {25}, unique-id = {2989694}, issn = {0962-9343}, abstract = {OBJECTIVE: In many jurisdictions, deterioration in quality of life assessed with Dermatology Life Quality Index (DLQI) is used for medical and reimbursement decisions in various dermatological conditions such as psoriasis. However, utility values for health states defined by the DLQI have not yet been evaluated. Therefore, we aim to estimate utilities for different health states described by the ten items of the DLQI. METHODS: A cross-sectional survey was performed in a convenience sample of the general population. Seven DLQI health states with total scores of 6, 11 and 16 (3-3 and 1 states, respectively) were developed. All of them were different from each other in the number of affected items and severity levels of impairment. The 10-year time trade-off method was used to value health states. RESULTS: Mean utilities elicited by the respondents (n = 308) for the three 6-, three 11- and one 16-point DLQI health states were 0.62-0.75, 0.59-0.66, and 0.56, respectively. In half of the six pairwise comparisons, where health states with the same total DLQI score were compared, significant difference between utilities was found. In eight out of the 15 comparisons between health states with different DLQI scores, utilities were not significantly different. CONCLUSIONS: Utility values for health states with identical DLQI total score may significantly vary. This result might be generalisable to various patient populations, in which the DLQI is used; nevertheless, further research is needed. The discrepancies between DLQI scores and utilities might have an impact on medical and reimbursement decisions as they make the utility gain from treatment uncertain.}, year = {2016}, eissn = {1573-2649}, pages = {1687-1696}, orcid-numbers = {Kárpáti, Sarolta/0000-0002-8472-0712; Poór, Adrienn Katalin/0000-0002-6524-9021} } @article{MTMT:2933717, title = {Comparative analysis of decision maker preferences for equity/efficiency attributes in reimbursement decisions in three European countries.}, url = {https://m2.mtmt.hu/api/publication/2933717}, author = {Baji, Petra and Garcia-Goni, M and Gulácsi, László and Mentzakis, E and Paolucci, F}, doi = {10.1007/s10198-015-0721-x}, journal-iso = {EUR J HEALTH ECON}, journal = {EUROPEAN JOURNAL OF HEALTH ECONOMICS}, volume = {17}, unique-id = {2933717}, issn = {1618-7598}, abstract = {BACKGROUND: In addition to cost-effectiveness, national guidelines often include other factors in reimbursement decisions. However, weights attached to these are rarely quantified, thus decisions can depend strongly on decision-maker preferences. OBJECTIVE: To explore the preferences of policymakers and healthcare professionals involved in the decision-making process for different efficiency and equity attributes of interventions and to analyse cross-country differences. METHOD: Discrete choice experiments (DCEs) were carried out in Austria, Hungary, and Norway with policymakers and other professionals working in the health industry (N = 153 respondents). Interventions were described in terms of different efficiency and equity attributes (severity of disease, target age of the population and willingness to subsidise others, potential number of beneficiaries, individual health benefit, and cost-effectiveness). Parameter estimates from the DCE were used to calculate the probability of choosing a healthcare intervention with different characteristics, and to rank different equity and efficiency attributes according to their importance. RESULTS: In all three countries, cost-effectiveness, individual health benefit and severity of the disease were significant and equally important determinants of decisions. All countries show preferences for interventions targeting young and middle aged populations compared to those targeting populations over 60. However, decision-makers in Austria and Hungary show preferences more oriented to efficiency than equity, while those in Norway show equal preferences for equity and efficiency attributes. CONCLUSION: We find that factors other than cost-effectiveness seem to play an equally important role in decision-making. We also find evidence of cross-country differences in the weight of efficiency and equity attributes.}, year = {2016}, eissn = {1618-7601}, pages = {791-799} } @article{MTMT:2896207, title = {Treatment preferences of originator vs. biosimilar drugs in Crohn’s disease; discrete choice experiment among gastroenterologists}, url = {https://m2.mtmt.hu/api/publication/2896207}, author = {Baji, Petra and Gulácsi, László and Lovász, Barbara Dorottya and Golovics, Petra Anna and Brodszky, Valentin and Péntek, Márta and Rencz, Fanni and Lakatos, Péter László}, doi = {10.3109/00365521.2015.1054422}, journal-iso = {SCAND J GASTROENTERO}, journal = {SCANDINAVIAN JOURNAL OF GASTROENTEROLOGY}, volume = {51}, unique-id = {2896207}, issn = {0036-5521}, year = {2016}, eissn = {1502-7708}, pages = {22-27}, orcid-numbers = {Lovász, Barbara Dorottya/0000-0003-0894-5669; Lakatos, Péter László/0000-0002-3948-6488} } @article{MTMT:3058339, title = {Fragile X syndrome: Economic burden and health-related quality of life of patients and caregivers in France}, url = {https://m2.mtmt.hu/api/publication/3058339}, author = {Chevreul, K and Berg, Brigham K and Brunn, M and des, Portes V}, doi = {10.1111/jir.12215}, journal-iso = {J INTELL DISABIL RES}, journal = {JOURNAL OF INTELLECTUAL DISABILITY RESEARCH}, volume = {59}, unique-id = {3058339}, issn = {0964-2633}, abstract = {Background: Fragile X syndrome (FXS) is the main hereditary cause of intellectual disability. Although the associated burden appears to be considerable, to date no study has comprehensively assessed the cost incurred because of FXS, including its specific impact on health-related quality of life and the burden on caregivers using standardised quantitative tools. The aim of this article is to provide data in order to increase awareness of the repercussions of FXS on patients and caregivers as well as on the health and social care systems in France. Methods: A retrospective cross-sectional study was carried out on 145 patients recruited through Le Goëland X-Fragile and Mosaïques, the French FXS patient associations. Data on their demographic characteristics and resource use were obtained from an online questionnaire, and costs were estimated by a bottom-up approach. The EQ-5D health questionnaire was used to measure patients' and caregivers' health-related quality of life. Perceived burden of care was measured using the Zarit Caregiver Burden Interview. The Barthel index, a non-utility-based assessment, was used to measure patients' level of dependence. Results: The annual total direct cost of FXS was estimated at €25800 per patient. The main contributors were informal care provided by the main caregiver (€10500) and social services (€8400). Healthcare costs, estimated at €2700, represented only a minor share. Mean EQ-5D utility scores were 0.49 for patients and 0.75 for caregivers. The mean burden for caregivers as measured by the Zarit Caregiver Burden Interview was 39.9. Conclusions: Fragile X syndrome requires significant resources that are mainly of a non-medical nature and are higher for children than for adults. Compared with related diseases, it constitutes a particularly high burden for caregivers. Using a bottom-up approach and a wide range of standardised measures, this study underscores the need for greater awareness of the burden of FXS as well as an assessment of new and existing interventions to address it. © 2015 John Wiley & Sons, Ltd.}, keywords = {Quality of Life; Costs; Fragile X syndrome; ECONOMIC BURDEN}, year = {2015}, eissn = {1365-2788}, pages = {1108-1120} } @article{MTMT:3018065, title = {Terhesség asszociált melanomák klinikopatológiai jellemzőinek retrospektív vizsgálata}, url = {https://m2.mtmt.hu/api/publication/3018065}, author = {Fábián, Melinda and Tóth, Veronika and Somlai, Beáta and Hársing, Judit and Kuroli, Enikő and Rencz, Fanni and Kuzmanovszki, Daniella and Szakonyi, József and Tóth, Béla and Kárpáti, Sarolta}, journal-iso = {BVSZ}, journal = {BŐRGYÓGYÁSZATI ÉS VENEROLÓGIAI SZEMLE}, volume = {91}, unique-id = {3018065}, issn = {0006-7768}, year = {2015}, eissn = {2064-261X}, pages = {235}, orcid-numbers = {Fábián, Melinda/0000-0001-7348-3347; Tóth, Veronika/0000-0003-2008-2376; Kuzmanovszki, Daniella/0000-0002-2599-5775; Tóth, Béla/0000-0003-0498-0387; Kárpáti, Sarolta/0000-0002-8472-0712} } @article{MTMT:3018064, title = {Infekciók potenciális szerepe anti-TNF-α kezelés hatásvesztésének hátterében psoriasisban}, url = {https://m2.mtmt.hu/api/publication/3018064}, author = {Herszényi, Krisztina and Pap, Dalma and Polgár, Karolina and Jókai, Hajnalka and Wikonkál, Norbert and Inotai, Dóra and Tordai, Attila and Rencz, Fanni and Brodszky, Valentin and Gulácsi, László and Kárpáti, Sarolta and Holló, Péter}, journal-iso = {BVSZ}, journal = {BŐRGYÓGYÁSZATI ÉS VENEROLÓGIAI SZEMLE}, volume = {91}, unique-id = {3018064}, issn = {0006-7768}, year = {2015}, eissn = {2064-261X}, pages = {236}, orcid-numbers = {Jókai, Hajnalka/0000-0002-5940-2261; Wikonkál, Norbert/0000-0003-4949-8711; Tordai, Attila/0000-0001-6966-1622; Kárpáti, Sarolta/0000-0002-8472-0712; Holló, Péter/0000-0002-0744-8989} } @article{MTMT:3016047, title = {Lokalizált scleroderma és szisztémás sclerosis betegséggel élők életminősége és betegségterhe - a BURQOL-RD európai felmérés magyarországi eredményei}, url = {https://m2.mtmt.hu/api/publication/3016047}, author = {Péntek, Márta and Czirják, László and Pfliegler, György and Boncz, Imre and Melegh, Béla and Molnár, Mária Judit and Kosztolányi, György and Baji, Petra and Brodszky, Valentin and Pogány, Gábor and Gulácsi, László}, journal-iso = {IMMUNOLÓGIAI SZEMLE}, journal = {IMMUNOLÓGIAI SZEMLE}, volume = {7}, unique-id = {3016047}, issn = {2061-0203}, year = {2015}, pages = {21-29}, orcid-numbers = {Boncz, Imre/0000-0003-3699-6236; Molnár, Mária Judit/0000-0001-9350-1864} }