Child-to-adult transition: a survey of current practices within the European Reference Network for Rare Neurological Diseases (ERN-RND)

Nanetti, L.; Kearney, M.; Boesch, S.; Stovickova, L.; Ortigoza-Escobar, J.D.; Macaya, A.; Gomez-Andres, D.; Roze, E.; Molnar, M.-J. [Molnár, Mária Judit (Neurológia), author] Genomic Medicine and the Institute of Rare Dise... (SU / FM / I); Wolf, N.I.; Darling, A.; Vasco, G.; Bertini, E.; Indelicato, E.; Neubauer, D.; Haack, T.B.; Sagi, J.C. [C. Sági, Judit (genetika), author] Department of Genetics, Cell- and Immunology (SU / FM / I); Genomic Medicine and the Institute of Rare Dise... (SU / FM / I); Department of Pediatrics (SU / FM / C); Danti, F.R.; Sival, D.; Zanni, G.; Kolk, A.; Boespflug-Tanguy, O.; Schols, L.; van, de Warrenburg B.; Vidailhet, M.; Willemsen, M.A.; Buizer, A.I.; Orzes, E.; Ripp, S.; Reinhard, C.; Moroni, I.; Mariotti, C. ✉; ERN-RND Working Group for Management of Transition [Collaborative Organization]