Development of paediatric non-stage prognosticator guidelines for population-based
cancer registries and updates to the 2014 Toronto Paediatric Cancer Stage Guidelines
Gupta, Sumit ✉; Aitken, Joanne; Bartels, Ute; Bhakta, Nickhill; Bucurenci, Mihaela; Brierley, James D.; De, Camargo Beatriz; Chokunonga, Eric; Clymer, Jessica; Coza, Dana; Fraser, Chris; Fuentes-Alabi, Soad; Gatta, Gemma; Gross, Thomas; Jakab, Zsuzsanna [Jakab, Zsuzsanna (Gyermekgyógyászat...), szerző] II. Sz. Gyermekgyógyászati
Klinika (SE / AOK / K); Kohler, Betsy; Kutluk, Tezer; Moreno, Florencia; Nakata, Kayo; Nur, Sari; Parkin, D. M.; Penberthy, Lynne; Pole, Jason; Poynter, Jenny N.; Pritchard-Jones, Kathy; Ramirez, Oscar; Renner, Lorna; Steliarova-Foucher, Eva; Sullivan, Michael; Swaminathan, Rajaraman; Van, Eycken Liesbet; Vora, Tushar; Frazier, A. L.
Angol nyelvű Sokszerzős vagy csoportos szerzőségű szakcikk (Folyóiratcikk) Tudományos
Population-based cancer registries (PBCRs) generate measures of cancer incidence and
survival that are essential for cancer surveillance, research, and cancer control
strategies. In 2014, the Toronto Paediatric Cancer Stage Guidelines were developed
to standardise how PBCRs collect data on the stage at diagnosis for childhood cancer
cases. These guidelines have been implemented in multiple jurisdictions worldwide
to facilitate international comparative studies of incidence and outcome. Robust stratification
by risk also requires data on key non-stage prognosticators (NSPs). Key experts and
stakeholders used a modified Delphi approach to establish principles guiding paediatric
cancer NSP data collection. With the use of these principles, recommendations were
made on which NSPs should be collected for the major malignancies in children. The
2014 Toronto Stage Guidelines were also reviewed and updated where necessary. Wide
adoption of the resultant Paediatric NSP Guidelines and updated Toronto Stage Guidelines
will enhance the harmonisation and use of childhood cancer data provided by PBCRs.